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Joanne S · 01-18-2013, 11:35 PM

Roz, I feel for you. I had multiple severe complications too. (reconstruction w/expanders) In addition to severe PMPS (post mastectomy pain syndrome) I had a severe infection that almost killed me.....and ended up with chronic back problems. My plastic surgeon was in denial that there was a problem. In addition to physical therapy, I saw two other plastic surgeons and had additional surgery. I also saw a Physiatrist (physical medicine doctor). And I still get treatments regularly from a Manipulative Osteopathic doctor. Unfortunately I don't have breasts. My chest is deformed and I can't wear a bra w/prothesis because it causes pain. I still have back pain but it's more tolerable.

Perhaps you can get some additional diagnostic tests to find out if there is a pinched or dangling nerve or some other hidden problem. In this day and age we should not have to suffer with continuous pain. Please, please consider getting more opinions and diagnostics. Wishing you improvement! In my prayers, Hugs, Joanne

01-18-2013, 11:35 PM	#11
Joanne S Senior Member Join Date: Aug 2007 Location: Detroit Metropolitan Area, Michigan Posts: 592	Re: RECONSTRUCTION warning, wish i knew Roz, I feel for you. I had multiple severe complications too. (reconstruction w/expanders) In addition to severe PMPS (post mastectomy pain syndrome) I had a severe infection that almost killed me.....and ended up with chronic back problems. My plastic surgeon was in denial that there was a problem. In addition to physical therapy, I saw two other plastic surgeons and had additional surgery. I also saw a Physiatrist (physical medicine doctor). And I still get treatments regularly from a Manipulative Osteopathic doctor. Unfortunately I don't have breasts. My chest is deformed and I can't wear a bra w/prothesis because it causes pain. I still have back pain but it's more tolerable. Perhaps you can get some additional diagnostic tests to find out if there is a pinched or dangling nerve or some other hidden problem. In this day and age we should not have to suffer with continuous pain. Please, please consider getting more opinions and diagnostics. Wishing you improvement! In my prayers, Hugs, Joanne __________________ Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+ Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4 Dec06-Nov07...Herceptin Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders Mar07-Jun07...Saline Exp Jun07...Start Tamoxifen Jun07-Aug07...Rad x 25 Jun07-Oct07...Persistent fevers-unknown origin Jun07-Nov07...PT for Severe PMPS & Capsular Contracture Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly. Feb08...NED 1st CANCERVERSARY!!!!! Feb08...2 months post surgery Caps Cont again :( Mar08...Stop Tamoxifen. Start Arimidex. Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks Feb11...NED 5th CANCERVERSARY!!!!! Feb12...NED 6th CANCERVERSARY!!!!! Aug12...Spotting. Surg=D&C Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+). Sep12...Stop Arimidex. Start Afinitor & Aromasin. Jan13...MRI = no progression no reduction Apr13...Progression. Stop Afinitor & Aromasin. Apr13...Start Chemo: Taxol & Carboplatin. Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston. Jan14...PET scan = no progression stable. May14...Pelvic > Bleeding & cramps. TMs up. May14...PET scan = uterine progression :( May14...Stop Fareston. Start Chemo: Xeloda. Last edited by Joanne S; 01-18-2013 at 11:38 PM..