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Re: Started Rads to chest for SVCS
Jessica,
I posted a reply ( or thought I had) a couple days ago but obviously forgot something! Too bad, I worked very hard on it and felt I was very eloquent in expressing my feelings about how YOU must be feeling. Lost in cyberspace...
Anyway, what I wanted to say was I felt such relief for you when I read your post that I cried. It was like having an unshoulderable burden lifted from you. It is so hard to fight with so many options, so many"experts" and so much at stake. You are so very strong and full of life.
When I get caught up in trying to over manage complicated treatment choices, I usually end up completely paralyzed by the over analysis and the feeling that there are actually no, or many, "right" answers. If I'm lucky, I remember I just need to surrender it, and my prayer is for wisdom for my caregiving team.
You have a great team, who seem to be smart, on your side, and fully on board with you in this fight. You also have a great family who loves you and it sounds like you are having a special Christmas, if not the one you had planned.
Much love to you my friend,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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