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Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti
May she remain NED forever! My daughter,Susan, is following in her footsteps. The doctor said he will up the dose since he has consulted with your team. He hesitated to do it last session as my daughter had a bad reaction the treatment before with extreme vomiting and was hospitalized for a few days.
Hopefully this coming week he will give her the larger IT herceptin dose. The spine mets have been stable, but we would like to see a decrease in volumn and maybe even have them go completely away.
As in your wife's case, my daughter was given only a few weeks and she is floating along OK so far.(Diagnosed in July of this year.) Still just getting the 40 herceptin IT along with the topotecan.
Many good wishes and thanks for your information that helps others.
Ev
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