HER2 Support Group Forums - View Single Post - after reading post by Rolepaul on brain mets--repostr 4 those running out of options

Rolepaul · 12-23-2012, 08:16 PM

Results still show NED. Now to treatments once per four weeks for IT Herceptin and Topotecan, once per three weeks for IV HCarolina.erceptin. Both doctors are writing articles on Nina's care. We are trying to get out the word to any one that will listen to us. One year after diagnosis with a 90 day predicted lifespan, Nina is still her self.
We made a decision that life is too short to deal with people we do not know. The result is that we are moving from Raleigh North Carolina to just outside of Boulder Colorado. We will be near Nina's parents, cousins, Aunt, and other family. We love the area. I took a job consulting in the pharmaceutical area, and will be able to be more outspoken on the treatment for Nina. Same money, more travel, but should be better home life for us. This is the best Christmas present I could give Nina. Her present to me is to continue to be my life partner.
We want Nina's results to give hope for a better future to those who are in similar situations to our last Christmas. Everyone was making end of life decisions, but we made start of new life decisions. We wish all a Merry Christmas and have positive results in their healthcare. To those of you who are NED, we have joined you and want to stay here!
HAPPY HOLIDAYS!!!!!!!!!!

12-23-2012, 08:16 PM	#25
Rolepaul Senior Member Join Date: Jan 2012 Location: Boulder Colorado as of January 2013 Posts: 391	Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti Results still show NED. Now to treatments once per four weeks for IT Herceptin and Topotecan, once per three weeks for IV HCarolina.erceptin. Both doctors are writing articles on Nina's care. We are trying to get out the word to any one that will listen to us. One year after diagnosis with a 90 day predicted lifespan, Nina is still her self. We made a decision that life is too short to deal with people we do not know. The result is that we are moving from Raleigh North Carolina to just outside of Boulder Colorado. We will be near Nina's parents, cousins, Aunt, and other family. We love the area. I took a job consulting in the pharmaceutical area, and will be able to be more outspoken on the treatment for Nina. Same money, more travel, but should be better home life for us. This is the best Christmas present I could give Nina. Her present to me is to continue to be my life partner. We want Nina's results to give hope for a better future to those who are in similar situations to our last Christmas. Everyone was making end of life decisions, but we made start of new life decisions. We wish all a Merry Christmas and have positive results in their healthcare. To those of you who are NED, we have joined you and want to stay here! HAPPY HOLIDAYS!!!!!!!!!!