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Re: My Update on 09-093 Trial
Congratulations Karen ! You are one tough cookie !! That was one rough tx schedule, Lorraines was just t dm-1 every 3 weeks. Lorraines now in a rollover trial too, passed the one yr ned mark in Nov. soon comes t dm-1 approval , then we can get away from these company rules. we have good ins., so should cover. others may stay in trial , so costs are covered by co.
We want flexibility, as ned continues, becuase of s/e like plats, and neuropathy. Lorraines ' neuropathy was already there before t dm-1, from nav. ,xeloda, but we now feel t dm-1 has increased it, for both reasons we asked for an exception, which the co. just gave, if plats are below 75,000, but above 60,000 , we can delay tx to monthly, maybe more time. When appr comes , we may go with 3.0 monthly, and prayerfully , later next yr go to 2.4, trying to balance ned w/ health in the long-term. so , think about building in breaks. God Bless, have a great Holiday. we are very grateful for t dm-1 , our best Holiday in 6 yrs.
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