HER2 Support Group Forums - View Single Post - My Update on 09-093 Trial

StephN · 12-22-2012, 02:33 PM

Dear K -
Thanks for the further explanation. At least staying on the trial gets you the drugs paid for by the companies who make the drugs.
OH! You do remind me the amount of time it took at the infusion suite each week to get three drugs. But they each worked a little differently, and I would give them their instructions as they were entering the IV line. Had just enough energy afterwards to make a run into the organic foods store on my way home, get the groceries put away and collapse onto my bed.
Month after month after month. But the good scans kept me going. Trying to outrun the cancer cells is a hard race!

As in your case, we never knew exactly which of the three drugs I took was most effective, just that there was an established synergy. On a two drug regimin it is a little easier to tell. And most of us know that for mets a single agent is not the most effective.

12-22-2012, 02:33 PM	#7
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: My Update on 09-093 Trial Dear K - Thanks for the further explanation. At least staying on the trial gets you the drugs paid for by the companies who make the drugs. OH! You do remind me the amount of time it took at the infusion suite each week to get three drugs. But they each worked a little differently, and I would give them their instructions as they were entering the IV line. Had just enough energy afterwards to make a run into the organic foods store on my way home, get the groceries put away and collapse onto my bed. Month after month after month. But the good scans kept me going. Trying to outrun the cancer cells is a hard race! As in your case, we never knew exactly which of the three drugs I took was most effective, just that there was an established synergy. On a two drug regimin it is a little easier to tell. And most of us know that for mets a single agent is not the most effective. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.