[michka]

Dear Karen. Thank you so much for sharing. First let me tell you how happy I am you are Ned. I remember being so worried when you were trying to enter the trial and then so amazed it worked so well and so fast but you never really told us how difficult it had been. I understood that bad neuropathy led you to drop Taxol but I did not know it even hit your eye! And that SMA!
You are so courageous. I am asking myself how the oncs determine what side effects come from what product? The second question is about that TDM1 dosage. It is so high if you multiply by 3. It is the double of a 3 week dosage. Am I right to calculate that way? How do they know if it is not that dosage that brought you Ned and not the combo?
Thank you for the info about neuropathy. I have residual neuropathy from my first treatment with Taxol and it is getting worse in my feet. I hope it will stabilize because I am now on a lower TDM1 dosage.
What is the "extended study"? Perjeta + weekly TDM1? For how long?
Karen, your post gives hope to many! Hugs. Michka