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phil · 12-12-2012, 12:08 PM

We so appreciate your Speaking Up ! You and the others who spoke up , wore the shirts sent a message : We are Speaking Up for Stage IV Rights !
I didn't expect you to get much response from the docs, pharma reps , or " Big Advocacy ' It was worth a small gamble , sending shirts, flyers . Hoping for an investigative type reporter to pick up the story . That may still come when approval comes. but maybe not , so we will have to Protest ! If i had been able to get to San Antonio , I would have been protesting outside, just like in Boston this past yr., protesting that these Big Entities ( FDA, Big Advocacy, Docs who wont speak ( will get black listed ) just don't get it , that this FDA\ Big Pharma - led cancer drug approval System actually exploits Stage IV Survivors . And is not keeping up w/ 21st century advances like t dm-1, pert., drugs w/ fewer s/e. So , again , thanks for speaking up , T DM-1 is so good ( not perfect ) , that it will lead the way in exposing the failures of This FDA System.

12-12-2012, 12:08 PM	#52
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: Meeting Up in San Antonio NEXT WEEK! We so appreciate your Speaking Up ! You and the others who spoke up , wore the shirts sent a message : We are Speaking Up for Stage IV Rights ! I didn't expect you to get much response from the docs, pharma reps , or " Big Advocacy ' It was worth a small gamble , sending shirts, flyers . Hoping for an investigative type reporter to pick up the story . That may still come when approval comes. but maybe not , so we will have to Protest ! If i had been able to get to San Antonio , I would have been protesting outside, just like in Boston this past yr., protesting that these Big Entities ( FDA, Big Advocacy, Docs who wont speak ( will get black listed ) just don't get it , that this FDA\ Big Pharma - led cancer drug approval System actually exploits Stage IV Survivors . And is not keeping up w/ 21st century advances like t dm-1, pert., drugs w/ fewer s/e. So , again , thanks for speaking up , T DM-1 is so good ( not perfect ) , that it will lead the way in exposing the failures of This FDA System.