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Re: Diagnosed this month
Raz;
I also had a lumpectomy and my tumor was 3 cm with negative node involvement. On my first visit to my oncologist he pulled out a printed sheet that seemed to prove that radiation alone was sufficient treatment for my situation. Having a microbiology degree (very old but still....) I was not comfortable with this but before I could state my case he found on physical exam a tumor in my supraclavicular node. Everything changed and I then received chemo, radiation...and this was before I was tested for her2. My point is that I believe everyone who is her2+ should have chemo as this type of cancer is sneaky, aggressive and likes to travel. I would get a second opinion or insist on chemo. It's not that bad really and I think it's better to give it all in the first go around. My very best to you.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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