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Old 12-06-2012, 02:12 PM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Oldie with new Name

Hi Tammy. Stay strong. I just want to share what I lived. Before starting TDM1 I also had to have a stent put in urgently. My liver enzymes were limit for the trial. I was feeling really bad. I had tumors in my lungs, abdomen and thorax. I also had steroids for my first round of TDM1. During the first 3 rounds of TDM1 I felt a lot of pain in my abdomen and near the liver. (in the thorax also but that is another problem with TDM1). The first scan after 6 weeks showed big improvements. So my message is that even if you feel strange things in your body, keep faith.
I had a liver resection a year before and had investigated at the time a Cyberknife option. It is a possibility if the tumor is not too big. In my case a Cyberknife center in France was ready to operate on 3 x 1cm tumors. I opted for resection. During the resection they also used RFA on 2 other small tumors they discovered. How many tumors do you have in the liver and what size?
The first thing I hope though, is that TDM1 will work for you too Tammy.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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