HER2 Support Group Forums - View Single Post - news + Non scientific but makes me feel good

fullofbeans · 12-03-2012, 05:35 PM

I have had my tumours in my airways oblitarated (95% removed), so I breathe more easily without making a noise like if I was snoring awake. it was getting pretty bad and felt like i would chock sometimes.

[PS: I do not want to be mis-read I still have a lot of tumors in my lungs inclded 2 that are over 6>cm and smaller ones. The 95 % refers to the blockage only of the airways (in the carinas and bellow) they burned the blockage doing a sort bronchoschopy with a laser at the end, but cannot remove tumours else where with this menthod unfortunately.]

I am going through criteria and biopsy for a trial.. will let you know when it is comfirmed I am accepted (do not want to jinx it), it a super lapatinb type, next generation trialled in the UK and Japan.

Otherwise ouside of science:
the following makes me feel good , don't judge me!!

http://www.youtube.com/watch?v=2XnSgIFnF3I

http://www.youtube.com/watch?v=ufVjdvRw4LM

I after all beleive in the power of praying

12-03-2012, 05:35 PM	#1
fullofbeans Senior Member Join Date: Jan 2007 Location: UK Posts: 617	news + Non scientific but makes me feel good I have had my tumours in my airways oblitarated (95% removed), so I breathe more easily without making a noise like if I was snoring awake. it was getting pretty bad and felt like i would chock sometimes. [PS: I do not want to be mis-read I still have a lot of tumors in my lungs inclded 2 that are over 6>cm and smaller ones. The 95 % refers to the blockage only of the airways (in the carinas and bellow) they burned the blockage doing a sort bronchoschopy with a laser at the end, but cannot remove tumours else where with this menthod unfortunately.] I am going through criteria and biopsy for a trial.. will let you know when it is comfirmed I am accepted (do not want to jinx it), it a super lapatinb type, next generation trialled in the UK and Japan. Otherwise ouside of science: the following makes me feel good , don't judge me!! http://www.youtube.com/watch?v=2XnSgIFnF3I http://www.youtube.com/watch?v=ufVjdvRw4LM I after all beleive in the power of praying __________________ 35 y/o June 06: BC stage I Grade 3; ER/PR neg Her-2+++; lumpectomies Aug 06: Stage IV liver mets: 6 tumours July 06 to Jan 07: 2FEC+6Taxotere; 3TACE; LITT March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle). Herceptin since 2006 NED til Oct 09 Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised.. Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo.. superior vena cava blocked: stent but face remains puffy April 2012: Teresa Trial, randomised to TDM1 Nov 2012 progressing on TDM1 Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes. Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor. 'Under no circumstances should you lose hope..' Dalai Lama Last edited by fullofbeans; 12-04-2012 at 01:05 AM..*