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Old 11-29-2012, 07:08 PM   #38
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
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Re: Meeting Up in San Antonio NEXT WEEK!

Paula -
Responding to your idea:
" I'd like to propose getting everybody attending the symposium together briefly to meet each other sometime during the break on Wednesday 12 - 1;35 (How about 12:30?) The sessions before then are at Exhibit Hall D--shall we meet there?"

The exhibit times are from 11 am to 5 pm. Some of us have to be at our table during that whole time, so WE do not get the break you spoke of. However, our place in the exhibit hall will not be hard to find - T-8, and we are an end booth sticking out into the center area.

There are round tables nearby and we can eat our lunch there and take turns being behind our booth. When you check in and get your conference materials, you will get an orange book of the presentation details and a map of the exhibit hall will be in the back of that.

There is still the Tuesday night after the HER2 talks, at 7:30. We will need to find some place for a bite to eat.

Hope this helps.

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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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