HER2 Support Group Forums - View Single Post

mamacze · 11-29-2012, 06:29 PM

Frank
This is such a hard time for Beatriz -and for you. I am so sorry she has lepto - it seems like she is progressing and at her wits end. Her treatment has been aggressive to date and IT Herceptin via a reservoir seems like an appropriate next step. It is hard to find treatments that cross the blood brain barrier. Does she have confidence in her doctors? Has she had her tumor biopsied? She is fortunate to have you.
Kim (from CT)

11-29-2012, 06:29 PM	#3
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 639	Re: brain metastases leptomeningeal Frank This is such a hard time for Beatriz -and for you. I am so sorry she has lepto - it seems like she is progressing and at her wits end. Her treatment has been aggressive to date and IT Herceptin via a reservoir seems like an appropriate next step. It is hard to find treatments that cross the blood brain barrier. Does she have confidence in her doctors? Has she had her tumor biopsied? She is fortunate to have you. Kim (from CT) __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!