[phil]

Alright Paula , here we go !! " Phils " First rule : W / all these BIG organizations , " its not personal, its impersonal ", helps me kee p my sanity . For ex., This FDA Oncology Drug Review Division ( whew ! ) is not against Lorraine personally getting life-saving tx . Second Rule : We are non-partisan, we are not anti govt, not anti -Big Business , nor anti - Big Research, nor anti - Big Advocacy. Any large organization can lose touch w/ those its designed to serve, merely , by getting too big. and how could they all really understand Stage IV issues , when they havent personally experienced it ? And when , until the past 10 -15 yrs , so few Stage IV pts lived long enough to SPEAK UP , even now too many die too fast, too young . But more and more are living longer, and speaking up . I admire the perseverance of the founders of NBCC , and Metavivor, who dealt w/ many founding mbrs dying . But they did not give up. ( Metavivor does seem to have some affibity for BC Action top leadership. I havent even mentioned BC Action top leaders writing to This FDA in April , 2010, asking them to NOT APPROVE T DM-1 ! ) .
I try not to attack people personally, but I tell it like it is . I had aretired Congressman tell me early on, " They don't talk like that down in DC " . he wanted me to be more " politically correct ', I agonized over that a while, but really feel called to speak truth . I know people don't like to admit mistakes, but we all make them. Peope's lives are at stake . I am more sad than angry w/ the top FDA folks.
hey. breaks over , back to work. Appreciate your willing ness to step out for Stage IV. i will post talking pts later today. God Bless .