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Lani · 11-25-2012, 12:48 PM

Where do you live?

There are nonsystemic alternatives for both the brain mets and the liver mets

There are cyberknife and gamma knife as well as whole brain radiation. The first two avoid a lot of unintended effects on the brain and many here have been successfully treated that way. Larger brain mets may need to be treated more than one time as I understand it

There are many ways to treat the liver met, but the brain must come first as swelling inside the skull can be a medical emergency.

There is a website called brainmets.org which might be helpful

I have no personal experience here, so wait for others to chime in

I have posted on the difference between cyber and gammaknife and asked others to post exactly what happened when they went in for treatment so others could benefiteg gamma knife requires a placement ring which just bareless screws into the skull whereas cyberknife does not. I got several people to describe just how this worked/felt.

If you go to the search function in the magenta bar above and type in Lani cyberknife or Lani brain mets I have posted on boswellia, tykerb and other substances that cross the blood-brain barrier.

Please also look at my posts on radioactive iodine treatment of brain mets and today's post that there is a trial of radioactive iodine for those who don't just have brain mets. As it is Stage I, it is not for her now. As I understand it he needs to have a treatment confirmed to work to get any swelling down quickly such as cyberknife/gammaknife/or whole brain radiation.

I have posted articles showing that it is important to remain on herceptin even after brain metastases just adding other drugs that do cross the blood-brain barrier as those who remained on herceptin even after the brain mets did MUCH better.Again. use the search function for herceptin brain metastasis or herceptin after brain metastasis.

I try to keep posting on this site an arsenal of information for those facing
new problems. They are from the scientific literature but usually I try to translate them to make them more understandable and the input from those who have actually gone through the treatments you will find on this site is invaluable.

Best of luck!

11-25-2012, 12:48 PM	#7
Lani Senior Member Join Date: Mar 2006 Posts: 4,780	Re: Please help Where do you live? There are nonsystemic alternatives for both the brain mets and the liver mets There are cyberknife and gamma knife as well as whole brain radiation. The first two avoid a lot of unintended effects on the brain and many here have been successfully treated that way. Larger brain mets may need to be treated more than one time as I understand it There are many ways to treat the liver met, but the brain must come first as swelling inside the skull can be a medical emergency. There is a website called brainmets.org which might be helpful I have no personal experience here, so wait for others to chime in I have posted on the difference between cyber and gammaknife and asked others to post exactly what happened when they went in for treatment so others could benefiteg gamma knife requires a placement ring which just bareless screws into the skull whereas cyberknife does not. I got several people to describe just how this worked/felt. If you go to the search function in the magenta bar above and type in Lani cyberknife or Lani brain mets I have posted on boswellia, tykerb and other substances that cross the blood-brain barrier. Please also look at my posts on radioactive iodine treatment of brain mets and today's post that there is a trial of radioactive iodine for those who don't just have brain mets. As it is Stage I, it is not for her now. As I understand it he needs to have a treatment confirmed to work to get any swelling down quickly such as cyberknife/gammaknife/or whole brain radiation. I have posted articles showing that it is important to remain on herceptin even after brain metastases just adding other drugs that do cross the blood-brain barrier as those who remained on herceptin even after the brain mets did MUCH better.Again. use the search function for herceptin brain metastasis or herceptin after brain metastasis. I try to keep posting on this site an arsenal of information for those facing new problems. They are from the scientific literature but usually I try to translate them to make them more understandable and the input from those who have actually gone through the treatments you will find on this site is invaluable. Best of luck!