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phil · 11-19-2012, 07:35 PM

I think getting to wear comfortable jeans is one more fringe benefit of being a bc activist. i have some t shirts , maybe a dozen , pink and black. u cansee them at http://stageivsurvivor.webs.com. also flyers left over from our protests earlier this yr. we won't get to do another protest for quite awhile up here in Boston, too cold , no conventions that i know of. rather see them get used than go to waste. i'm serious , i'll ship them this week. PM me if u want some.
u should check w/ the her2support.org board about wearing them at the booth. its not w/o precedent thast a bc web support grp gets involved in activism. breastcancer.org and mylifeline.org both sent official reps to the Avastin hearings in 2011. testified to thier support for stage iv rights. it is about our rights beyond t dm-1. flexible tx, informed choice, more $ for research. get fda politics out of acc. appr., we want stageiv pts input at the FDA approval discussions. as far as appr for t dm-1 , if its not done by the Symposium , it highlights the disrespect , disregard, This FDA has for pts. patronize us. and even if its appr by then ( wouldn't that be great ! ), you still spek for We Stage Ivs at the Sympsium. if appr comes tomorrow , I will still be Protesting This FDA . 4 more yrs of this disrespect ? no way.

11-19-2012, 07:35 PM	#12
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: Meeting Up in San Antonio NEXT WEEK! I think getting to wear comfortable jeans is one more fringe benefit of being a bc activist. i have some t shirts , maybe a dozen , pink and black. u cansee them at http://stageivsurvivor.webs.com. also flyers left over from our protests earlier this yr. we won't get to do another protest for quite awhile up here in Boston, too cold , no conventions that i know of. rather see them get used than go to waste. i'm serious , i'll ship them this week. PM me if u want some. u should check w/ the her2support.org board about wearing them at the booth. its not w/o precedent thast a bc web support grp gets involved in activism. breastcancer.org and mylifeline.org both sent official reps to the Avastin hearings in 2011. testified to thier support for stage iv rights. it is about our rights beyond t dm-1. flexible tx, informed choice, more $ for research. get fda politics out of acc. appr., we want stageiv pts input at the FDA approval discussions. as far as appr for t dm-1 , if its not done by the Symposium , it highlights the disrespect , disregard, This FDA has for pts. patronize us. and even if its appr by then ( wouldn't that be great ! ), you still spek for We Stage Ivs at the Sympsium. if appr comes tomorrow , I will still be Protesting This FDA . 4 more yrs of this disrespect ? no way.