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Re: Long (overdue) update...
Hi and I'm so sorry you have this progression but don't blame yourself, there are no books on this and we try to do our best as we go along and I think you were brave going to NY for that trial, as brave as all the earlier women who tried Herceptin and enabled myself and so many others to benefit, they took chances too..just as you did. You sound an amazing strong lady and you will find that hidden strength and comfort and peace from within to help you get back to NED and some kind of normal I'm sure, this is a bump and while I don't (sadly) know enough as some of the members here to offer advice I'll be keeping you in my thoughts and prayers for a good response to treatment, hang in there!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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