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Re: MBCaware.org
Nancy,
Oh yes, this is true - most have focused on extending life. I was sooooooo lucky to get into a vaccine trial that focused on preventing a recurrence. That gave me incredible peace of mind, but I just finished the boosters . . . so I'm kind of hanging in the wind waiting to see if I'm one of the lucky ones.
Since research is competitive, collaboration is out - unless the system is changed to reward collaboration.
I'm concerned about what happened with my friend - she's BRCA positive and had difficulty with a clinical trial because the company decided the market wasn't big enough. Since companies can patent genes - these patents might prevent much needed research by other companies. Then all the research money in the world will be a mute point.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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