Thread: MBCaware.org
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Old 10-30-2012, 04:51 PM   #7
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
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Re: MBCaware.org

I find this very confusing. The majority of clinical trials are for metastatic breast cancer. I had to search long and hard for one for early or primary breast cancer.

To be honest, I have gotten the impression that from the significant amount of funds raised by the pink campaigns, only a small portion goes to any type of research - most is put back into the organization, or paid out in salaries.

But it doesn't matter. Patients are not enrolling in clinical trials. I don't care if the "cure" for cancer is found tomorrow. We won't get it. If it takes 5 years for full enrollment, and the trial takes 5 years to accumulate the data needed for approval at the FDA, then it won't help most MBCers.

Raising funding is just part of the cure, the other part depends on us, the cancer patient. The white elephant is also lurking in our living rooms, in our doctor's office and at the infusion rooms across America. We've got to enroll in the clinical trials.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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