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Nancy L · 10-19-2012, 11:18 AM

You are a wise man. My current reoccurrence was finally detected on Pet when I started to have tingling in my fingers which proceeded with severe pain up my right arm and then my rt shoulder and back. I lived in bed.On an ice pack and pain meds for weeks before the scan revealed a 3 cm tumor in my rt supraclavical which was pressing on the branchial plexus. I couldn't eat and lost a lot of weight. i got a new appreciation for the pain so
many patients try to live with. I begged for radiation to start ASAP. I had 19 rads. The pain discomfort I have now is only in my rt hand. They tell me it will take a long time for these small nerves to regenerate and they may never regenerate. After radiation they made me wait at least 6 wks for chemo which was fine because I was busy trying to get T-DM1. Barb has to get the pain under control to fight onward with chemo.

10-19-2012, 11:18 AM	#35
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: Update on Barb You are a wise man. My current reoccurrence was finally detected on Pet when I started to have tingling in my fingers which proceeded with severe pain up my right arm and then my rt shoulder and back. I lived in bed.On an ice pack and pain meds for weeks before the scan revealed a 3 cm tumor in my rt supraclavical which was pressing on the branchial plexus. I couldn't eat and lost a lot of weight. i got a new appreciation for the pain so many patients try to live with. I begged for radiation to start ASAP. I had 19 rads. The pain discomfort I have now is only in my rt hand. They tell me it will take a long time for these small nerves to regenerate and they may never regenerate. After radiation they made me wait at least 6 wks for chemo which was fine because I was busy trying to get T-DM1. Barb has to get the pain under control to fight onward with chemo.