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Nancy L · 10-18-2012, 08:07 PM

I am so so sad to hear this update. You fought so hard to get T-DM1 and it is so difficult for me to understand why it didn't work. Barb has not received much chemo in her journey compared to so many others so it can't be that. Just as an FYI, my recurrences have both been in the neck nodes and a mass in the right supraclavical area. If I didn't get T-DM1 (which he recommended as first choice), Dr Slamon recommended TCH for me. I didn't want TCH because it is harsh but it may end up that way if T-DM1 doesn't work for me either. I will have to decide if I will do that given my weakened state of health.

I pray halogen works for Barb. You two deserve a break.

10-18-2012, 08:07 PM	#30
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: Update on Barb I am so so sad to hear this update. You fought so hard to get T-DM1 and it is so difficult for me to understand why it didn't work. Barb has not received much chemo in her journey compared to so many others so it can't be that. Just as an FYI, my recurrences have both been in the neck nodes and a mass in the right supraclavical area. If I didn't get T-DM1 (which he recommended as first choice), Dr Slamon recommended TCH for me. I didn't want TCH because it is harsh but it may end up that way if T-DM1 doesn't work for me either. I will have to decide if I will do that given my weakened state of health. I pray halogen works for Barb. You two deserve a break.