Thread: Update on Barb
View Single Post
Old 10-18-2012, 01:03 PM   #28
MikeF
Senior Member
 
MikeF's Avatar
 
Join Date: Sep 2010
Location: Shelby, N.C.
Posts: 114
Re: Update on Barb

Just returned from Barbs Dr. hes taking her off TDM-1 and starting Haloven next Tuesday. She has progressed considerably while on TDM-1 theres a mass at the base of her neck that has done nothing but grow so bye bye TDM-1. She also started radiation today on the skin mets and the mass on her neck. Her neck has really been bothering her so I pray Haloven does the trick. I wish I understood why we have to go through what weve been through.We fought long and hard for the TDM-1 twice now, once to be randomized to Tykerd on Emelia and now we get compassionate access and it does nothing. I think her doctor is as upset about this as we are he really seems to care for Barb and that makes us feel like we are where God would have us to be. Hes sure not wasting any time we were scheduled for Cat scans on the 26th and treatmant on the 30th. He feels like theres no point in a scan when you can obviously see progression and he marched us straight across the hall to the radiation dept and told them to work her in today for treatment. Just wanted to let you all know where were at in this crazy journey.
__________________
Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
MikeF is offline   Reply With Quote