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Emelie B · 10-11-2012, 07:30 AM

Hello Jen,
I wanted to chime in here and tell you about my experience with hospice since June of this year. Everyone that I have encountered has been wonderful to me. Very supportive and on top of everything I need to stay comfortable. I have been on continous oxygen since the beginning of Sept. and morphine has been the drug that allows me to live a pretty normal life. I also take dexamethasone for the inflammation in my lungs from the cancer. There are other med's that I take on a daily basis, but I don't think I should post them here. If you want to know more about that, please email me or private message me. I would be glad to share.

As for how I am doing, I am good. I can tell it is progressing because of the lack of oxygen and the fatigue, but we are managing to tile the master bath and have dinner with friends. Pretty good for me. I have to really pace myself and know when to rest and when to go for it.

My nurse visits me once a week to review my meds and make sure I am NOT in any pain and that I am doing well. She also checks in with me at least twice a week just to say "hi". I feel like I am getting better care now than I ever did in regular treatment.

I hope you got my card and passed it on to your Mom, and that you will contact me with any questions you have. We are all here for you Jen, no matter what.

Take care and love to your Mom you are all in my prayers,
Emelie B

10-11-2012, 07:30 AM	#118
Emelie B Senior Member Join Date: Jan 2010 Posts: 170	Re: Prayers needed for Sheila Hello Jen, I wanted to chime in here and tell you about my experience with hospice since June of this year. Everyone that I have encountered has been wonderful to me. Very supportive and on top of everything I need to stay comfortable. I have been on continous oxygen since the beginning of Sept. and morphine has been the drug that allows me to live a pretty normal life. I also take dexamethasone for the inflammation in my lungs from the cancer. There are other med's that I take on a daily basis, but I don't think I should post them here. If you want to know more about that, please email me or private message me. I would be glad to share. As for how I am doing, I am good. I can tell it is progressing because of the lack of oxygen and the fatigue, but we are managing to tile the master bath and have dinner with friends. Pretty good for me. I have to really pace myself and know when to rest and when to go for it. My nurse visits me once a week to review my meds and make sure I am NOT in any pain and that I am doing well. She also checks in with me at least twice a week just to say "hi". I feel like I am getting better care now than I ever did in regular treatment. I hope you got my card and passed it on to your Mom, and that you will contact me with any questions you have. We are all here for you Jen, no matter what. Take care and love to your Mom you are all in my prayers, Emelie B __________________ Nov. 2006-IDC with Her2 +++ A/C for 3 rounds Dec. 2006- Herceptin and Taxotere March 2007-MRM with 8 of 14 lymph node involvement May 2007-36 Rads Sept. 2007- Stopped Herceptin Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone Feb. 2010- Started Herceptin/Taxol and Zometa April 2010-PET scan clear. Herceptin and Zometa June 2010- Stopped Herceptin continue Zometa and still NED August 2010-Back on Herceptin and Zometa every 3 weeks August 13, 2010- Had another port placed August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks Nov. 2010-PET scan clear Feb. 2011-Brain MRI clear March 2011- PET scan clear May 2011- PET scan clear Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin April 2012- Entered palliative care June 5, 2012-Entered hospice care Planning my memorial