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Old 10-05-2012, 12:19 AM   #9
Joanne S
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Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
Re: Question/ sister now diagnosed

Since my recent news of metastasis, I discussed this testing with my oncologist. I was pretty much in shock after getting my mets diagnosis so I have no ideas if I comprehended anything that day.

I too have two daughters, now 21 and 27 years old, so I've decided to get tested, and I'm currently waiting on my results. When I was originally diagnosed in 2006, I decided to hold off on this test because my daughters were so young and had a very remote risk of getting breast cancer for some years.

If I understood my doctor correctly ?????
Regardless if your mother has been diagnosed with breast cancer or not, If your mother is still alive, that is the person that should be tested first.
If your mother is negative, it is not necessary for you or your daughters to be tested.
If your mother is positive, then you have a 50% chance of having the gene.
If you are negative, it is not necessary for your daughters to be tested.
If you are positive, each of your daughters have a 50% chance of having the gene.
Not all breast cancers are a result of being positive for this gene.
Only are small percentage of the general breast cancer's population cancer are positive for the BRCA genes.
And if I don't have any of this correct, please let us know. THANK YOU!

My mother was diagnosed with Stage IV breast cancer (it was everywhere in her bones) in 1994 and she passed in 1996. Since she refused chemo and radiation other than Tamoxifen, and me not having any knowledge about cancer, I never asked any questions about the type.... I only knew she was hormone positive (being on Tamoxifen). My doctors advised that your BC tumor is kept for 7 years in case further testing or re-testing is needed, but I'm not sure that it is preserved for all patients or in certain cases.
If anyone know, please advise. THANKS!
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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