HER2 Support Group Forums - View Single Post - First post-treatment scan and I am beyond freaked out

Cathya · 10-03-2012, 07:49 PM

Europa;

I so totally understand your feelings. I also have had pain in my ribs that comes and goes.....for 6 years!! It must be from the operation and many scans have shown no mets....perhaps this is you too. However, at this point until someone tells you they have found mets please try not to worry. When I was first diagnosed and before I found this site, I knew a woman in the next town who had breast cancer. Whenever I would feel panic I would call her. She would calm me down by reminding me that no one was telling me something horrible, that at that point I had nothing to worry about. I found that over time knowledge was truly power. The more I learned from this site about my cancer the more relaxed I became....not all the time of course...these tests are truly taxing...but we have every reason to be positive and hopeful today and so do you. Europa, I don't know if this helps but I hope so. I'll be watching for your results. Take care.

Cathy

10-03-2012, 07:49 PM	#2
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: First post-treatment scan and I am beyond freaked out Europa; I so totally understand your feelings. I also have had pain in my ribs that comes and goes.....for 6 years!! It must be from the operation and many scans have shown no mets....perhaps this is you too. However, at this point until someone tells you they have found mets please try not to worry. When I was first diagnosed and before I found this site, I knew a woman in the next town who had breast cancer. Whenever I would feel panic I would call her. She would calm me down by reminding me that no one was telling me something horrible, that at that point I had nothing to worry about. I found that over time knowledge was truly power. The more I learned from this site about my cancer the more relaxed I became....not all the time of course...these tests are truly taxing...but we have every reason to be positive and hopeful today and so do you. Europa, I don't know if this helps but I hope so. I'll be watching for your results. Take care. Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18