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Old 10-02-2012, 04:06 PM   #2
jacqueline1102
Senior Member
 
Join Date: Apr 2012
Posts: 183
Re: How do you live well?

Hello Amanda,

I empathize with your post. As far as your question about living well, I have tried to continue my routine as much as possible. I work fulltime, love my husband, and spend time every week/weekend with family and friends. I tend to ruminate so spending alot of time being idle is not healthy for me. I do take supplements now; COQ10, Glucosamine, 2000 mg of Vitamin D daily, and have eliminated diet coke from the diet. I still love the ole' Starbucks which I treat myself to on the weekends. Mindfulness is a form of meditation and therapy methods which is useful. You might read up on mindfulness. I continue to exercise weekly although being consistent is a challenge. We had our house painted recently which is something we have wanted to do for some time. Fall is here and decorating for the season is always great fun. My 50th bday is coming up so we are having a blow out party. We also plan trips. Seattle was this summer. St. John in January. I try not to think about whether or not I am not going to be here to celebrate the special events in my life. I just schedule the trip and go. Much easier said than done. I have an awesome support network which I know many women don't have. I am blessed that I have a profession I love, a husband who adores me, and friends who unconditionally love me. I will continue to work and contribute as long as I can. It helps right now that I am also responding to treatment which provides some hope. I try to gauge myself by how my body feels. The emotional despair can take over but if the body is feeling good I push myself. I try to live in the land of now while still planning for fun in the short term future. All that being said, I don't have children which makes for a far different situation in my opinion. You are a mom with young children. I hope this helps.
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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