HER2 Support Group Forums - View Single Post - 12 years since DX - stage IV - still NED

StephN · 09-25-2012, 05:21 PM

Feeling so bad for some of our dear sisters here who are in much more trouble than I am.

I have a lot of experience with this problem as my dear hubby had a piece of disk pressing on his L5 about 15 years ago. He had to have 2 laminectomies before his problem was permanently (so far) fixed.

Thus I know about the leg pain he endured and what type of neurosurgery fixed that. His healing went quite well both times - until quite a while after the first one he tried to pick up a case of champagne from the floor and caused the same disk to protrude again. Therefore second surgery. Lesson learned!

Guess after all I have been through from my cancer, I don't consider this back episode life-threatening, and it will be over in the near future. Gotta think positive!

09-25-2012, 05:21 PM	#30
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: 12 years since DX - stage IV - still NED - new problem Feeling so bad for some of our dear sisters here who are in much more trouble than I am. I have a lot of experience with this problem as my dear hubby had a piece of disk pressing on his L5 about 15 years ago. He had to have 2 laminectomies before his problem was permanently (so far) fixed. Thus I know about the leg pain he endured and what type of neurosurgery fixed that. His healing went quite well both times - until quite a while after the first one he tried to pick up a case of champagne from the floor and caused the same disk to protrude again. Therefore second surgery. Lesson learned! Guess after all I have been through from my cancer, I don't consider this back episode life-threatening, and it will be over in the near future. Gotta think positive! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 10-02-2012 at 06:17 PM..