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Re: Update on Barb
Nancy
Barb has always been very private which really complicates things. Every drug she has been on has had no negative side effects. I have gone to every meeting with the doctor and every time he asks if shes had this or that its no, no, no. So I guess what Im trying to say is I would'nt rely on Barb to gauge side effects. Maybe after this second dose we will see a different response, I'll try to keep you all informed. The only thing we were concerned about after the first treatment was a tightness in her chest which we thought might be a heart issue but the doctor said there where no signs that he could see to indicate a problem there. He feels that the mass in her left breast has solidified considerably, which we knew, and thats what is causing the discomfort mainly at night when trying to sleep horizontally. I dont know if this helps anyone or not but there it is.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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