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Comedy of Errors
Were trying hard to keep a positive attitude after yesterday. We went in yesterday afternoon to sign papers for Barbs access to TDM-1. She had an appointment to see the Onco at 3:00 so the hospital asked us to be there at 2;30 to look over the paperwork and ask any questions we may have. There were a couple of questions that they told us only the doctor could answer so we held off signing till we saw him. After answers to our questions by the doctor and the blood work they needed it appeared we had a green light for the TDM-1 today. She was actually told to be there this morning at 9:00. We returned to the social worker to sign the papers and thats when she decides to clue us in that there was a small problem taking delivery of the drug. Apparently UPS showed up Saturday when the Cancer Clinic was closed instead of Friday as planned. UPS decided to deliver to the Hospital Phamacy and apparently the drug was not refrigerated so Genentech has to ship again. Are you serious, the doctor wasnt aware, they scheduled here to go in at 9:00. They called this morning to say they expect a delivery today sometime and they will call when it gets here. Unbelievable
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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