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Old 08-14-2012, 11:33 AM   #15
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: Metastatis Breast Cancer - Herceptin required

Manish;

I am so sorry to hear of Dimples diagnosis. I did have problems with herceptin and ended up having to come off the drug without doing a full year as my Muga scored dropped. I did not have any other side effects and found herceptin to be much, much easier than chemo as the others have said. Having said I came off herceptin early though you will see in a recent post posted by Lani that recent research has proven that even a brief time taking herceptin has very positive results. I do think that Dimples being ER/PR+ is another positive for her. My very best wishes for you both and please keep us informed of her progress. I have no doubt if you search the site for more information you will find a treasure trove which might give you some comfort.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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