HER2 Support Group Forums - View Single Post - Denied compassionate use of TDM1

Nancy - not Rugo, although I do see melisko at UCSF. Right now I am being treated by Garrett smith. He was our courtney's onc. I met him at her memorial service. He has met with the highers up at genentech, and when I asked how firm the sept 15th date was, he didn't hesitate when saying it is a hard date. I hope he is right!!

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March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.

08-08-2012, 06:31 PM	#15
DeenaH Senior Member Join Date: Apr 2010 Posts: 129	Re: Denied compassionate use of TDM1 Nancy - not Rugo, although I do see melisko at UCSF. Right now I am being treated by Garrett smith. He was our courtney's onc. I met him at her memorial service. He has met with the highers up at genentech, and when I asked how firm the sept 15th date was, he didn't hesitate when saying it is a hard date. I hope he is right!! __________________ March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast. April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly. August 2010: Finished chemo! August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast. September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm. September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2. October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not. 12/15/10: Brain MRI clear 1/7/11: PET/CT 1/13/11: Recurrence in lungs. Start Tykerb 5/13/11: Progression in lungs 6/3/11: Lung surgery to get tumors for chemosensitivity testing.