Thread: Waiting for NED
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Old 08-03-2012, 11:53 AM   #3
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
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Re: Waiting for NED

Amy,
For me...knowing that wherever this ugly journey heads...I'm not alone...is what helps me stay positive and keep fighting. When my Mom was terminal, she told me many times, "There are lots of things worse than dying." She could feel Jesus near her...walking beside her...maybe even carrying her sometimes like in the Footprints story.

I strive for that kind of peace...but I have to admit...I struggle. I want to let Him be in control...handle things for me...but I seem to keep snatching the reins back from time to time. And, of course...the injustice of being so sick, and relatively young...well that pisses me off sometimes. Especially with all the horribly mean and selfish, but healthy people all over the place.

Hmmm...rereading that...it's really not much help. Sorry. It seems to me you're doing your best to be positive under the circumstances...and your best is all anyone can expect. (even you!) Try not to be too hard on yourself.

Sending love and hugs!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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