Are there costs associated with expanded access, sometimes called "compassionate use"?
Investigational drugs are expensive to manufacture. Some companies provide the drug for free to patients. Other companies charge patients costs associated with the manufacture of the drug. Most insurance companies will not pay for access to an investigational drug. In addition, there may be additional costs associated with administration and monitoring of the investigational drug by healthcare professionals.
http://www.fda.gov/ForConsumers/ByAu.../ucm176098.htm
It's probably wise to discuss who will carry burden of cost for treatment with Genentech.