HER2 Support Group Forums - View Single Post - T-DM1 & Pertuzumab: Still NED

StephN · 06-22-2012, 05:39 PM

Karen -
My CEA did not jump - just edged up a couple or 3 points at a time. When it reached 6, my med onc did a bone scan first as that was likely in many cases, then we did bloodwork a little more frequently. This process took more than 6 months.

Since I had no symptoms to point to brain mets, that annual screening was not moved up.

I am just glad that I had only the two tumors and nothing else.

Rolepaul - Glad we have accumulated enough people and info on this site that it has some clout after all these years!!!

I was out and driving the day after my Gamma Knife. I had a low dose of decadron that I weaned from fast.

06-22-2012, 05:39 PM	#26
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: T-DM1 & Pertuzumab: Still NED Karen - My CEA did not jump - just edged up a couple or 3 points at a time. When it reached 6, my med onc did a bone scan first as that was likely in many cases, then we did bloodwork a little more frequently. This process took more than 6 months. Since I had no symptoms to point to brain mets, that annual screening was not moved up. I am just glad that I had only the two tumors and nothing else. Rolepaul - Glad we have accumulated enough people and info on this site that it has some clout after all these years!!! I was out and driving the day after my Gamma Knife. I had a low dose of decadron that I weaned from fast. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.