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Re: When it rains it doesn't always pour- right?
So I just got a call from my oncologist's nurse about the elevated tumor markers and she says that he wants to wait and see what next month's markers do. Grrrrrr, and to top it off- I can't get TDM1 yet. I'm torn- do I insist on changing to a new therapy now, or can I trust my doctor that within a month either 1) the numbers will start falling OR 2) He'll start me on TDM1 or pertuzumab ??!?!?!! I hate these situations where we have to be our own advocate, I've been here before- like when my family doc said that my lemon size tumor was a plugged duct, I wish I would have pushed her for that mammo immediately.
So ladies, please chime in with whether your numbers after starting an endocrine therapy briefly went up and then (fingers crossed) went down again. Since my ovary removal my numbers went from 96 (before surgery) to 107 (1 month after surgery) and now to 129 (2 months since surgery). Has anyone ever seen it where after surgery the tumor markers flare and then take a dive?
Help, suggestions? Feedback! Thanks in advance.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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