HER2 Support Group Forums - View Single Post - When it rains it doesn't always pour- right?

caya · 06-22-2012, 05:39 AM

Kristin, my brother had symptoms like your husband - it turned out his Vitamin B12 levels were drastically low, they call it pernicious anemia. He had a brain scan which showed "something", the neurologist thought it was MS, but the GP said no it was the pernicious anemia. And it's 4 years later now, and my brother is fine because he takes daily sublingual B12 capsules. A simple blood test will determine the levels, and if deficient, one can either take oral sublingual pills or get the shots.
I myself am low in Vitamin B12 too, so I get the shot about once every 6 weeks.
Of course with two biological aunts with MS, you have to check it out, but please know about this other possibility.

I hope you get the TDM1 ASAP.

all the best
caya

06-22-2012, 05:39 AM	#4
caya Senior Member Join Date: Jan 2007 Location: Thornhill, Ontario Canada Posts: 2,320	Re: When it rains it doesn't always pour- right? Kristin, my brother had symptoms like your husband - it turned out his Vitamin B12 levels were drastically low, they call it pernicious anemia. He had a brain scan which showed "something", the neurologist thought it was MS, but the GP said no it was the pernicious anemia. And it's 4 years later now, and my brother is fine because he takes daily sublingual B12 capsules. A simple blood test will determine the levels, and if deficient, one can either take oral sublingual pills or get the shots. I myself am low in Vitamin B12 too, so I get the shot about once every 6 weeks. Of course with two biological aunts with MS, you have to check it out, but please know about this other possibility. I hope you get the TDM1 ASAP. all the best caya __________________ ER90%+/PR 50%+/HER 2+ 1.7 cm and 1.0 cm. Stage 1, grade 2, Node Negative (16 nodes tested) MRM Dec.18/06 3 x FEC, 3 x Taxotere Herceptin - every 3 weeks for a year, finished May 8/08 Tamoxifen - 2 1/2 years Femara - Jan. 1, 2010 - July 18, 2012 BRCA1/BRCA2 Negative Dignosed 10/16/06, age 48 , premenopausal Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so. Reclast infusion January 2012 Oopherectomy October 2013 15 Years NED!!