[KsGal]

I know you all are not doctors, but with all the years you have been fighting this, you know a lot more than I will probably ever know.

I had a CT scan when I started chemotherapy (TCH) back in January. It showed the one tumor in my liver that is still there.

I then had a PET scan that showed the tumor and another area of hyperdensity with some low uptake and no nodules. My doctor assumed this was an area of micromets. They biopsied the one tumor, but nothing else as there was no nodule large enough to be seen elsewhere in the liver.

I had a CT scan 1/2 way through chemotherapy that showed the tumor had shrunk, and showed nothing else anywhere in my body. Had another done last week at the end of chemo, and it showed the same tumor in my liver that had shrunk a little more, and nothing else.

I did not know anything about any nodules in my lungs at all until I read my own CT scans after asking for copies at the doctors office this morning. The original scan showed three nodules in my lungs. It is mentioned again in the PET scan I had immediately after, but it only said they were basically too small to fall within the range of the PET scan. They are never mentioned again in any reports, and were never mentioned to me at all.

I don't know what any of your doctors are like, so I don't know how to compare mine. He is supposed to be quite good. Mine has a TON of patients. He never remembers who I am when he sees me. He reads my chart in front of me, and always acts surprised to find out it is in my liver and I am stage IV. He asks me what I think are ridiculous questions over and over at every visit, like what side my BC was on, if I still have my primary tumor (I had a double mastectomy). A couple treatments ago he said I could not delay a chemo treatment due to an infection because "you have it in your lymph nodes". I said, I have it it in my liver and Im stage IV, and he looked completely surprised. I don't know if this is just how it is because these doctors have so many patients or what...but sometimes I honestly feel like I am learning things here on this site, and then I am going back to him and guiding my own treatment. I want to put LOL, but its not really all that funny.

Sorry for the crazy rant...I just get frustrated. Im thinking of sending all my records to Cancer Treatment Centers of America for a second opinion. Thoughts?