[michka]

Well, I don't know what to think. For me this "syndrome" is linked to TDM1 infusions since it comes at each cycle and then gets better until I get another infusion. As nobody reports what I feel it may be that something else is underlying and that TDM1 just makes it come out more. I don't like to be an exception.
I feel I am a detective eliminating different options to find the criminal :-)
Vicky I tried taking a proton pump inhibitor to see but it did not help.
The pain I feel in the thorax is not like a crush it is more like when you run too much or having a very low level of hemoglobin and taking a hot shower.
Hutchbick, my hemoglobin is over 12, so that's out. (but good!)
Barbara wouldn't a lung inflammation show on a scan? How did you find out you had that?
Chrisy, thank you for answering that you didn't have that side effect because you had TDM1 a long time and it is important to know that
Karen, I get a 3,6 mg/kg dose every three weeks. This is interesting although another subject: you get much much more TDM1 than me. The double in fact on a three week period. What should we think about that?
Is it better?
I have other side effects like pains and nausea and bad neuropathy (a souvenir from Taxol that gets worse with chemo) but I know how to handle that. On the first infusion I had abnormal pain in the abdomen all over but it did not come back.

Karen I will wait for your Pet/results hoping all is fine. I cannot imagine your shoe dropping off. Look at that nice princess picture! You have resisted Taxol with TDM1 and Pertuzumab. That must have been difficult. Your results give hope to all of us.

I am having my 4th infusion next week. I will report my problem again and continue my investigation...
Michka-Scherlock