HER2 Support Group Forums - View Single Post - 2nd try

v-ness · 06-12-2012, 08:55 AM

thank you for asking, Jackie. i just wrote her dad an hour ago. her breast cancer has mets to the spine and her doctors are concerned about the one highest on her spine. they have given her a drug to put her into immediate menopause to shrink the breast tumor and were doing some radiation on what is left of the pituitary tumor. last i knew, the local oncologist had referred her to Dana Farber to see if they had something more to help her. it is frustrating because her parents pass info on to me and they only know bits and pieces and don't know the lingo we all learn during BC. i hope to hear more today and will share. i do know a HER2+ woman treated at DF who has had it in her liver and bones and is in her 7th year now. but unfortunately my niece is not HER2+.

06-12-2012, 08:55 AM	#8
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	Re: 2nd try - brain mets from the start thank you for asking, Jackie. i just wrote her dad an hour ago. her breast cancer has mets to the spine and her doctors are concerned about the one highest on her spine. they have given her a drug to put her into immediate menopause to shrink the breast tumor and were doing some radiation on what is left of the pituitary tumor. last i knew, the local oncologist had referred her to Dana Farber to see if they had something more to help her. it is frustrating because her parents pass info on to me and they only know bits and pieces and don't know the lingo we all learn during BC. i hope to hear more today and will share. i do know a HER2+ woman treated at DF who has had it in her liver and bones and is in her 7th year now. but unfortunately my niece is not HER2+. __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!