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Old 06-07-2012, 06:51 AM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: medscape article

Call back everyday - twice a day. In the morning and again in the afternoon. The greasy wheel does get oiled. Then also look into a consult elsewhere. Ask your current onc office for a copy of your chart - your full chart - now - today. A consult somewhere else will want that.

Usually radiation starts 4-8 weeks after chemo ends so you are still in a good window but they do have to "chart" your chest for radiation and that takes a week or so.

You can do this as you have already admitted that this does not affect anyone like it affects you and that is so true. Your feathers are a bit ruffled now so really ruffle them up now and call now for an appointment where you are at now. If you get no results, call in the afternoon and if no results, demand a copy of your chart to be picked up tomorrow morning. Look for another consult to make an appointment with now and make an appointment.

I was never a rock the boat person either until my onc (at the time) wouldn't give me Herceptin. I did the above and got another onc and got Herceptin. (Then my current onc called and said, "Becky, all you had to do was ask and I would have given you Herceptin". I told him I did a dozen times).

Go for it. We are here for you and cheering you on. This will be on your mind until you have an appointment.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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