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Re: medscape article
I would be livid if I got such a message from any of my medical team! I chose not to use the large hospital based multi-physician group in our town (there are only 2), instead opting for a small clinic because of that very kind of response. For my 2nd opinion I went to UA Birmingham, one of the top bc centers in the US where my original dx was affirmed and learned how highly thought of and respected my small practice oncologist is. That's a story better suited for another thread, but I feel empowered by the team at the clinic, they are fighting this battle WITH me.
Voice your concerns and irritations to your doctor about not feeling empowered and also stay in touch with this group. You will learn SO much on these boards.
God Bless
__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.
3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
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