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Old 06-06-2012, 05:48 PM   #4
LuckyLinda
Senior Member
 
Join Date: May 2012
Location: Virginia Beach, VA.
Posts: 38
Re: medscape article

I absolutely feel that way. Ultimately, I am relying on the expertise of my doctors and on their guidance in how best to treat my disease. I have no medical background, so I don't feel equipped to take charge of my own treatment. I can't order my own tests, I can't force the radiology department to get me in sooner, and I don't get to dictate which drugs would be most effective to treat my cancer. I couldn't even persuade my gynecologist's office to see me when I found a lump in my breast. It took a week and a complaint to the office manager, to get in. And it was October--National Breast Cancer Awareness month. I'm just trying to go with the flow, stay as positive as possible, and discuss my treatment options with my doctor in as intelligent a manner as I can. And I really like my oncologist and trust that he is doing what is best for me. But I do get frustrated when I read these signatures and realize that so many of the subscribers have been through the very same treatments only to find a year (or five years) down the road that their cancer has metastasized. There are days (like today when I am waiting for my oncologist's secretary to schedule my radiology consult and she leaves a message telling me that they are really busy but will try to "squeeze" me in sometime in the next week) when I get really scared that these "aggressive" cells are going to get away from me before the targetted treatment can stop them. The wheels move so slowly. I hope I am not the only person who gets frustrated and feels like things should move faster.
__________________
Found lump by self-exam 10/14/11
HER2neu +/Estrogen +/progesterone -
Grade III poorly differentiated
R side modified radical mastectomy on 12/09/11 with immediate reconstruction (expander)
Stage IIB 2 nodes + out of 10 removed
Double power port inserted 1/11/12
Chemo therapy (TCH) - every 21 days for 6 cycles beginning 1/25/12
Finished chemo on 5/21/12
Continue Herceptin only every 3 weeks until 12/28/12 Radiation (28 rads) began 6/26/2012.
Will start Femara after radiation ends (8/03/12)


From: It's Not About the Hair:
"The hope for healing is not born out of a fear of death, but a love of life.This is a very good thing. When people love life more than they fear death, they come to treatment with open hands, open hearts, open eyes.When people fear death more than they love life, they are clinging and clutching and grasping."
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