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__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy

06-01-2012, 03:14 PM	#8
yanyan Senior Member Join Date: Apr 2011 Posts: 403	Re: TDM-1 in the news Hi Fern, It is a beautiful picture of you on the news! I am very happy to hear that you are doing well on TDM1. We are praying it will be soon be available for people that need it ! __________________ 1/11 age 36 DX ER/PR-, Her2 + TCH6, Herceptin BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes 9/11 Radiation 3/12 Local recurrence to skin stage IV Whole body scan CLEAR 4/12 Tykerb & Xeolda Skin mets slowly regressing 8/12 PET & Brain CT Clear 5/13 Skin mets progressing 6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes 6/13 kadcyla 10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence 11/13 to 02/14 tykerb & herceptin 02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose 05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo 05/14 navelbine perjeta herceptin 07/14 skin mets progressing red rash worse 08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks 09/01/14 resection- clear margins 3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer Radiation 11/2014 with xeloda then weekly cisplatin 11/14 brain MRI clean 12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week 12/14 t current Herceptin and perjeta only 02/15 rash on upper back right side skin mets radiation planned 02/15 staring electron radiation 35 Stopped at 30 due to severe skin burn, resumed 10 days later 05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska. 05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line 07/15 multiple skin and lung recurrence begin halaven 11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious 11/15 heading to China for immune therapy