HER2 Support Group Forums - View Single Post

Vicki revised · 05-10-2012, 06:40 PM

The tips about Zertec and Zantac for the neulasta side effects work! Also, you will get a metal taste in your mouh from the carbo that will ruin the taste of eveything. Switch to plastic utencils, paper plates (some stoneware has metal in it), plastic cups and switch from canned drinks and foods to plastic cans. It really helped. Also, Biotene makes mouthwash, toothpaste and gel for mouth sores. They are a life saver if you get dry mouth and sores. When your hair starts falling out your scalp will be tender and sore so I wore a terrycloth turbanto bed to reduce the friction. I had chronic nosebleeds daily when the hairs in my nose fell out. Be careful about infection. My ENT gave me an antibiotic ointment to apply and it felt soothing. Also, a coolmist humidifier in my room at night helped out with the overall dryness of my skin as did aloe vera bathoil and Eucerin lotion products. Your eyes may run alot but still use artificial tears for relief. And enough can't be said about stool softeners! Good luck--you'll make it. 6 rounds of TCH eradicated my liver mets as well as the malignant nodes. It works.

05-10-2012, 06:40 PM	#19
Vicki revised Senior Member Join Date: Mar 2012 Location: Alabama Posts: 121	Re: It's official The tips about Zertec and Zantac for the neulasta side effects work! Also, you will get a metal taste in your mouh from the carbo that will ruin the taste of eveything. Switch to plastic utencils, paper plates (some stoneware has metal in it), plastic cups and switch from canned drinks and foods to plastic cans. It really helped. Also, Biotene makes mouthwash, toothpaste and gel for mouth sores. They are a life saver if you get dry mouth and sores. When your hair starts falling out your scalp will be tender and sore so I wore a terrycloth turbanto bed to reduce the friction. I had chronic nosebleeds daily when the hairs in my nose fell out. Be careful about infection. My ENT gave me an antibiotic ointment to apply and it felt soothing. Also, a coolmist humidifier in my room at night helped out with the overall dryness of my skin as did aloe vera bathoil and Eucerin lotion products. Your eyes may run alot but still use artificial tears for relief. And enough can't be said about stool softeners! Good luck--you'll make it. 6 rounds of TCH eradicated my liver mets as well as the malignant nodes. It works. __________________ Vicki Lord, give me the comfort of Your embrace and acceptance of Your will. 3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx. 7/11: Nothing left except Primary breast tumor now 1.5cm. 8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED! 10/11: NED! Continue Herceptin indef. 2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin. 5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly. 8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda. 10/12: Severe side effects. 3 weeks break from everything. 12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.