HER2 Support Group Forums - View Single Post - TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma

phil · 05-10-2012, 04:24 AM

Maybe Noreen , and her foundation will help, she understands Stage IV issues . The otherrs , Komen, ACS, NBCC, dont get it. Cant even find a decision -making person in ACS to talk w/ NBCC never returned my calls, e-mails last yr., and decided to play scientist w/ Avastin. Komen said , " We dont endorse a particular drug ". Its about supporting the Survivors. We know you're not scientists ! You are supposed to advocate for us .

05-10-2012, 04:24 AM	#7
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma Maybe Noreen , and her foundation will help, she understands Stage IV issues . The otherrs , Komen, ACS, NBCC, dont get it. Cant even find a decision -making person in ACS to talk w/ NBCC never returned my calls, e-mails last yr., and decided to play scientist w/ Avastin. Komen said , " We dont endorse a particular drug ". Its about supporting the Survivors. We know you're not scientists ! You are supposed to advocate for us .