HER2 Support Group Forums - View Single Post - TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma

phil · 05-09-2012, 06:16 PM

First sign and pass on the Petition. Then bombard the HHS officials listed above . We at Our Her2 Cancer Struggle plan to Rally on Monday, June 18th at the International Biotech Convention, in Boston. Any close by are welcome to attend, speak up. More details to follow. Another of our mbrs who has been waiting for t dm-1 finally got it, first scan shows good response after just 3 doses at 3.6 . Needed that up-lifting news this week. This crazy FDA has been allowed to wreak havoc with the approval process. Now I hear rumors that pertuzumab may be approved only for first re-occurences , or some thing like that ? Are they CRAZY ?? That cannot stand ! We need media attention to Publically Shame them ! I think all it will take is about 200 of us in our pink Fix The FDA shirts, w/ signs , at that Convention. You've seen our video on youtube, the only thing we missed was the media. Now we go where they are . Details to follow in the next few weeks.

05-09-2012, 06:16 PM	#3
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma First sign and pass on the Petition. Then bombard the HHS officials listed above . We at Our Her2 Cancer Struggle plan to Rally on Monday, June 18th at the International Biotech Convention, in Boston. Any close by are welcome to attend, speak up. More details to follow. Another of our mbrs who has been waiting for t dm-1 finally got it, first scan shows good response after just 3 doses at 3.6 . Needed that up-lifting news this week. This crazy FDA has been allowed to wreak havoc with the approval process. Now I hear rumors that pertuzumab may be approved only for first re-occurences , or some thing like that ? Are they CRAZY ?? That cannot stand ! We need media attention to Publically Shame them ! I think all it will take is about 200 of us in our pink Fix The FDA shirts, w/ signs , at that Convention. You've seen our video on youtube, the only thing we missed was the media. Now we go where they are . Details to follow in the next few weeks.