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Re: I think NED is leaving me...
Waiting is hard but I also agree 3 weeks seems too long me. it can be biopsie now anyway why wait? That is my opinion. You are a stage 4 and therefore unfortunatly you have to think that you are so much more at risk that somone who never had cancer, why wait.
I would claim mental anguish go and say that you are unable to sleep until you know. They did that to me and I waited in 2010 a couple of week until another appear! why wait!! I was so annoyed with them after. What I wish I had done say that I would not leave the office and stay there until they see me. What I don't understand is that if you had a ultrasound to show that it is 19mm why did they not stick a needle there and then?
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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