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Re: Me again..my face is still swollen..hard blood clot
Amelia and all of you , things are good I first want to say that it is hard to be showing happiness here when I do not know the outcome is for Michka.. i do not know what to say to randomisation, I have this sadness for the women who will not receive it for the chance they wanted and are being denied, and maybe it will not help anyway but a chance..and perhaps one has to believe that the other option was actually the option that was right for them.. and i almost wanted to not say today, I actually found out yesterday.
But my news are good: My blood are good despite taking heparin and will receive first TDM1 tomorrow.
My face is still swollen and things are not improving if anything getting worse. But I talked to the radiologist that did install my piccl line today he is in the team of the one that put my stent (but done at the trial centre another hospital), he said the stent should have kept the vein more open (he could do the test there and then to see what was happening). the vein is still too narrow despite the stenting and not all the "liquid" is going through it and being pushed out via another. Another stent could perhaps being put over my open it more and get my face back they will talk. I will go straight from the trial to my hospital I did not want to delay treatment.
Today was a good day for me.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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