Thread: Palliative Care
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Old 04-10-2012, 11:43 AM   #24
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
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Wink Re: Palliative Care

Dear Emilie B -

Thank you for your honest and candid post.
(I took the liberty of making a spelling correction on the thread title - to Palliative - with an "i".)

I am sure that the varying reactions come from differing points of view, some of which correspond to those here who are continuing treatment through thick and thin.

Your disease burden does not seem to be so large and numerous that it could not have a chance for control. This situation seems to be partly the cause of the "speechless" reponses, without that exactly being said.

I don't see any current marker numbers, but assume you have current scans to watch the changes by.

Amy's comment: "One of the affirmations I listen to says something like, "More and more, I realize that I can heal myself and live, or I can heal myself and die. My physical condition is not a factor in my wholeness." When I first heard that it was jarring."

That is the same tape I listened to every night as I fell asleep when I was beginning my mets fight against raging liver mets. I asked for healing of my spirit as well as my body. Strong prayers several times a day became my routine. I threw myself into my healing with all my might. If the good Lord might spare me because I was needed by my family and parents, I would give my body over to His plan.

Having stayed alive has not been without its trials, but I managed to make it through them all up to now. My family has never made me feel like I have been a burden, and I do all I can for them with the energy and strength I have, which is not constant. Some days are better than others.

Enjoy your trip to France and the beautiful spring weather that is upon us. My aunt also stopped treatment for a slow growing kind of breast cancer and lived for almost FIVE more years. She did use some alternative methods, and that was nearly 15 years ago.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 04-10-2012 at 06:05 PM..
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