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Re: Bad Pet. I need you.
Oh thank you for thinking of me!
I am waiting waiting waiting and I am fighting to get in the TDM1 Teresa trial in the south of France. I will know on the 11th if I am in the right arm. I had to do a scan, a brain mri, a bone scan, a heart echo all over again and they asked for slides from my last liver operation so they could check the HER2 status. They have to send the slides to Germany although I have all the pathology reports from Institut Gustave Roussy, one of the biggest cancer center in France. All this is very long. Too long.
I am not very well and my liver is letting me down little by little. I have pain, I cannot eat very well and now I have itching all over. I don't know what to do about the itching. I hope I will be in the TDM1 arm because I believe in it and also because I think my liver will not take a harder chemo. I felt so bad for Kelly who was not accepted in the TDM1 arm. There is no crossover in this trial. This is not right. I am not giving up but all this process is crazy for women who need a treatment. I figure they think we are already lost but we know here that we can hold out a long time with a sequence of different treatments. At least I hope....
Love to all. I will post next week to tell you if I am in the TDM1 arm.
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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